We are back from a successful trip to NY. Dr. Shprintzen (founder of Velocardiofacial Syndrome in 1978) and his team of experts were very informative about VCFS and what Briley needs. Dr. Shprintzen gave me hope and reassurance for Brileys future. He made me feel secure in feeling that it is okay to lead a normal life with a child with VCFS. Because you see for three years of her life, I have been running and searching for answers to find out her diagnosis and trying to find the best treatment for her that I forgot to enjoy her being who she is! Now with the help from Dr. Shprintzen and his distance care program, I can stop running scared because she is in good hands.

In his findings, Briley is going to need more extensive speech therapy, and in the next year have her tonsils removed and a pharyngeal flap surgery on her palate.He also informed us of a growth chart for VCFS children that should be used in measuring her growth.We are also in progress of getting her to eat more and in hopes of removing the feeding tube soon. There are going to be changes made but good changes for her! I would like to thank Dr.Shprintzen and team of experts for all their help and for being so friendly and informative. I also want to thank the Roanld McDonald House of Syracuse NY for their hospitality and kindness.

What a great experience to have help for my child, there is no other love greater. My heart wants to say "Thank You" for every little blessing it has felt because of all the prayers, love, generosity, and support that we received from our community.Without the help from all of you none of this trip would have been possible-SO THANK YOU!!